Updated: Jan 12, 2019
Meet Finn, a Charlotte boy who turned 4 years old on May 5, 2018. He’s full of life now, but his little body isn’t working like other children his age. Before he gets to celebrate his teen years, Finn will pass from a rare disease known as Hunter Syndrome. His parents are working with an organization called Project Alive to fund a clinical trial that researchers believe to be a CURE. They have raised enough money to start making the clinical trial drug which will be ready in July.
What is Hunter Syndrome?
Think of it this way: when your garbage can gets full, you take out the trash. But what if you can’t? What if bag after bag fills up, taking over your kitchen? Soon, it would be hard to walk around, cook, or clean. As the trash builds even higher, your kitchen becomes unusable. Similarly, children with Mucopolysaccharidosis Type II (MPS II), also known as Hunter Syndrome, are unable to make the enzyme that takes care of our cellular garbage, their bodies becoming like the kitchen in this example. Source: Project Alive
How can we help?
If 100,000 gave $15 each, they’d have the money needed to move forward and save Finn! Donate at projectalive.org/donate
Learn more about Finn in the video below: